Sharing this because it took me an embarrassingly long time to work out.
Is it normal to feel worse before better? Nobody told me that.
Everyone here blames the drug. Half the time it is the appointment schedule, not the molecule.
Half of what people describe as tolerance is a change in the underlying condition, and the two need different answers.
Following this because I am in the same place and have no idea what to ask at the appointment.
Interdose restlessness is distinct from the original symptom and worth naming separately.
It gets smaller. Not easy, smaller. That distinction kept me going.
The pain score conversation is thirty seconds of my life I will never get back, every time.
Ten percent cuts. Slower is faster.
Following this because I am in the same place and have no idea what to ask at the appointment.
Is it normal to feel worse before better? Nobody told me that. Five years in on expiry dates and it lines up.
Same here.
I would stop trying to convey how bad it is and start saying what you want them to do.