Not glamorous, but ordering in winter is the change that helped most.
Do it before the appointment, not during it.
One change at a time, otherwise you learn nothing about which one worked.
Anyone got something better?
Following this because I am in the same place and have no idea what to ask at the appointment.
The last ten percent of a taper takes as long as the first ninety. Nobody says so until you are in it.
Same shape here, different drug. The thing that helped was documenting the refusal rather than re-arguing it. They refer rather than write.
Sorry for the basic question, but how do you actually start one of these diaries?
Ten percent cuts, of the current dose not the original. That is the arithmetic that keeps it survivable. Tolerance was my main issue with ordering in winter too.
You have two changes at once here. You cannot attribute anything until one of them moves.
How do you tell the difference between the drug working and just a good week?
The pain score conversation is thirty seconds of my life I will never get back, every time. Five years in on ordering in winter and it lines up.
Ten percent cuts, of the current dose not the original. That is the arithmetic that keeps it survivable. Five years in on ordering in winter and it lines up.
Same here.
It gets smaller. Not easy, smaller. That distinction kept me going.
Function over score.
Careful with attribution. You changed the timing, the dose and the season. That is three variables.