Fifteen years of this and the function column is the only one that changed anything for me. Also, one page of history, printed, handed over at the start. It changes the appointment.

Changing prescriber does not reset anything, and people discover that the hard way. Not on a prior authorisation but the pattern is familiar.

Function over score.

I would stop trying to convey how bad it is and start saying what you want them to do.

Following this because I am in the same place and have no idea what to ask at the appointment.

Ask for the longer appointment slot. Ten minutes is not enough for a complex history and pretending otherwise wastes both your time.

The pain score conversation is thirty seconds of my life I will never get back, every time.

Interdose restlessness is distinct from the original symptom and worth naming separately.

Worth asking what specifically was measured. Pain scores move with mood and function does not.