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Function diary or pain diary? (2)

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sundowner
(@sundowner)
Estimable Member
Joined: 5 years ago
Posts: 79
Topic starter   [#24332]

I keep a symptom diary and it shows something interesting about nitrofurantoin that my appointments are too short to discuss.

My doctor wants to separate tolerance from a genuine change in the underlying problem, which sounds sensible until you try to describe the difference in a ten minute appointment.

The leaflet lists the sun sensitivity as common and then says nothing useful about how long it lasts.

What worked for you, and how long did it take before it worked?



   
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gridkelp
(@gridkelp)
New Member
Joined: 1 year ago
Posts: 2
 

You have two changes at once here. You cannot attribute anything until one of them moves. Not on nitrofurantoin but the pattern is familiar.



   
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oak1402
(@oak1402)
Active Member
Joined: 4 years ago
Posts: 5
 

Ten percent cuts. Slower is faster. How long have you been on nitrofurantoin?



   
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pebbleswift3
(@pebbleswift3)
Active Member
Joined: 1 year ago
Posts: 7
 

Ask for the longer appointment slot. Ten minutes is not enough for a complex history and pretending otherwise wastes both your time.



   
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nessline19
(@nessline19)
Active Member
Joined: 5 years ago
Posts: 8
 

It gets smaller. Not easy, smaller. That distinction kept me going.



   
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heaptor
(@heaptor)
New Member
Joined: 10 months ago
Posts: 2
 

Sorry for the basic question, but how do you actually start one of these diaries?



   
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AmberFlare
(@amberflare)
Active Member
Joined: 3 years ago
Posts: 7
 

Function over score.



   
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keelkelp
(@keelkelp)
New Member
Joined: 4 years ago
Posts: 3
 

Function over score.



   
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moss13
(@moss13)
Noble Member
Joined: 2 years ago
Posts: 1261
 

Enteric coatings should not be crushed. The pellets are the delivery mechanism.



   
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ridgerun76
(@ridgerun76)
Active Member
Joined: 2 years ago
Posts: 8
 

How do you tell the difference between the drug working and just a good week? Not on nitrofurantoin but the pattern is familiar.



   
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herbtundra
(@herbtundra)
New Member
Joined: 5 years ago
Posts: 3
 

Is it normal to feel worse before better? Nobody told me that. Two months in on nitrofurantoin and it lines up.



   
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loch4213
(@loch4213)
New Member
Joined: 5 years ago
Posts: 3
 

You have two changes at once here. You cannot attribute anything until one of them moves.



   
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echo6873
(@echo6873)
Active Member
Joined: 1 year ago
Posts: 6
 

Ten percent cuts, of the current dose not the original. That is the arithmetic that keeps it survivable.



   
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knoll_stone
(@knoll_stone)
Active Member
Joined: 1 year ago
Posts: 6
 

Same here.

Currently on nitrofurantoin myself.



   
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heathersummer29
(@heathersummer29)
Active Member
Joined: 7 months ago
Posts: 5
 

Personal experience, labelled as such, is exactly right here. Nobody is prescribing.



   
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