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Got my new shirt today!

11 Posts
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nettle_luck
(@nettle_luck)
Estimable Member
Joined: 1 year ago
Posts: 60
Topic starter   [#29795]

Started Lioresal (baclofen) eight months ago for pain and I am trying to work out whether what I am feeling now is tolerance or something else.

Withdrawal symptoms are not the same as side effects, and conflating them wasted a year of my life.

I have tried three of the alternatives and side effects was the problem with two of them.

Curious how others here structure the day around it.



   
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fen4081
(@fen4081)
Active Member
Joined: 4 months ago
Posts: 5
 

The pain score conversation is thirty seconds of my life I will never get back, every time.



   
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lantern_sands
(@lantern_sands)
New Member
Joined: 3 years ago
Posts: 2
 

Access to mugs should be on the clinical questionnaire.



   
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jadelance58
(@jadelance58)
Active Member
Joined: 2 years ago
Posts: 9
 

Ask for the longer appointment slot. Ten minutes is not enough for a complex history and pretending otherwise wastes both your time. Side effects was my main issue with baclofen too.



   
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cairnchain96
(@cairnchain96)
Active Member
Joined: 8 months ago
Posts: 6
 

Changing prescriber does not reset anything, and people discover that the hard way.



   
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kelp5134
(@kelp5134)
New Member
Joined: 6 years ago
Posts: 3
 

Fifteen years of this and the function column is the only one that changed anything for me. Also, one page of history, printed, handed over at the start. It changes the appointment.



   
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JuliaS
(@julias)
Illustrious Member
Joined: 1 year ago
Posts: 7019
 

Is it normal to feel worse before better? Nobody told me that.



   
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tor_lotus
(@tor_lotus)
Active Member
Joined: 2 years ago
Posts: 6
 

Interdose restlessness is distinct from the original symptom and worth naming separately.



   
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nettlecraft9
(@nettlecraft9)
New Member
Joined: 2 months ago
Posts: 4
 

Same shape here, different drug. The thing that helped was documenting the refusal rather than re-arguing it. They refer rather than write. How long have you been on baclofen?



   
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stormisle
(@stormisle)
Active Member
Joined: 2 years ago
Posts: 5
 

Function over score.



   
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sagedome43
(@sagedome43)
Active Member
Joined: 12 months ago
Posts: 6
 

Ten percent cuts. Slower is faster.



   
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