Same here.

Enteric coatings should not be crushed. The pellets are the delivery mechanism.

Same here.

Ten percent cuts, of the current dose not the original. That is the arithmetic that keeps it survivable.

I would stop trying to convey how bad it is and start saying what you want them to do.

Personal experience, labelled as such, is exactly right here. Nobody is prescribing.

Changing prescriber does not reset anything, and people discover that the hard way.

Following this because I am in the same place and have no idea what to ask at the appointment.

Same shape here, different drug. The thing that helped was documenting the refusal rather than re-arguing it. They refer rather than write.

Function over score.

Print the page.

Interdose restlessness is distinct from the original symptom and worth naming separately. Not on an appointment slot but the pattern is familiar.