Changing prescriber does not reset anything, and people discover that the hard way. Same for me with expiry dates, unfortunately.

Worth asking what specifically was measured. Pain scores move with mood and function does not.

Is it normal to feel worse before better? Nobody told me that.

Same here.

How long have you been on expiry dates?

Same here.

I would stop trying to convey how bad it is and start saying what you want them to do. Same for me with expiry dates, unfortunately.

Same here.

Same here.

Small wins count. Walking to the mailbox is a data point.

Sorry for the basic question, but how do you actually start one of these diaries?

How do you tell the difference between the drug working and just a good week?

Following this because I am in the same place and have no idea what to ask at the appointment.

Ten percent cuts, of the current dose not the original. That is the arithmetic that keeps it survivable.

Ten percent cuts, of the current dose not the original. That is the arithmetic that keeps it survivable.

Fifteen years of this and the function column is the only one that changed anything for me. Also, one page of history, printed, handed over at the start. It changes the appointment.