I would stop trying to convey how bad it is and start saying what you want them to do.

Ten percent cuts, of the current dose not the original. That is the arithmetic that keeps it survivable.

Changing prescriber does not reset anything, and people discover that the hard way.

Reference ranges differ between labs, so comparing two reports is close to meaningless.

Following this because I am in the same place and have no idea what to ask at the appointment.

The pain score conversation is thirty seconds of my life I will never get back, every time.

Everyone here blames the drug. Half the time it is the appointment schedule, not the molecule. Tolerance was my main issue with coming back after years away too.

Same here.

Small wins count. Walking to the mailbox is a data point.

Careful with attribution. You changed the timing, the dose and the season. That is three variables.

Enteric coatings should not be crushed. The pellets are the delivery mechanism.

Interdose restlessness is distinct from the original symptom and worth naming separately.

Worth asking what specifically was measured. Pain scores move with mood and function does not.

Same here.

The pain score conversation is thirty seconds of my life I will never get back, every time.